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How a Walking Stick Changed My Life with Chronic Illness
The author reflects on their journey with a walking stick, stemming from a past conversation about internalized ableism. Using the stick has improved mobility, reduced pain, and fostered support from others. They’ve encouraged others to consider mobility aids, highlighting the benefits of trying second-hand options while emphasizing a journey of self-acceptance and stress reduction.
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The jewellery I never get to wear
This post delves into the challenges faced by a chronically ill, anxious Autistic individual in attending social events, due to physical and mental considerations. The author highlights the complexities of preparing for outings, the impact on relationships, and the need for understanding from others. Despite missed opportunities, the individual prioritizes self-care and hopes for future…
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One does not simply walk into the doctors
There are too many steps to take before Disabled people get through the door at doctors’ surgeries or hospitals. We must unravel our feelings and experiences from those of our usual symptoms of chronic illness. Then we must muster up the energy to book an appointment, if we use AAC this can be even more…
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What I Would Like to Say – at the APPGC
To say my experience yesterday was phenomenal may be an understatement. Myself and colleagues from Help and Care, Macmillan Cancer Support , and the NHS went to the Houses of Parliament. We spoke at the All Party Parliamentary Group on Cancer about the findings from our What I Would Like to Say project. We talked…
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Autistic parenthood: Living with mum guilt
Content note: transphobia, death, grief, mentions of assault and murder, trauma. I’ve been struggling with a lot of things lately and it all centres around being a mum and not feeling good enough for the job. My feelings of mum guilt is massive. I feel I’m not doing enough for Little Man. I feel guilty…
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Activism in the everyday
“Activism doesn’t have to be big and loud it can be in every day conversations” Every time someone speaks up for marginalised folks they are advocating for themselves and others. Showing up for ourselves and other people is the biggest form of self care and activism. Activism doesn’t have to be big and flashy, web…
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Prisoner of the bodymind
Sharpened senses,mind wanders, skin crawls,Overwhelmed, understimulated,hyperactively stalled. Collapsed, burnt out, no sleep, joint pain,same food, medication, migraine again. Inertia, inhaler to breathe a bit,inactive, hysterical and still feel like shit. ‘lazy’, ‘crazy’, ‘stupid’, ‘mad’, just heat sensitive and seasonally sad. A jumble, a mess, a dumpster on fire.Living my truth whilst called a liar. Sharpened senses, mind wanders, skin…
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My experiences in a long-covid support group
Joining a Long-Covid online support group has definitely been an experience. Listening to people who were able-bodied experiencing disability for the first time definitely brings up some serious feelings for me, anger, frustration, annoyance, to name a few. I just want to shout through my computer screen “some of us live like this all the…