The What I Would like to Say project has been running since April 2022 and we’ve been able to speak to some amazing Disabled and Neurodivergent people about their experiences with cancer services in the UK ranging from accessing information and screening, to treatment, recovery and aftercare.
Through creative arts we were able to share with each other our experiences of cancer services, healthcare, accessibility issues and life in general.
I am honoured to have had people trust me with their stories and intimate parts of their journey. This research (which is already shaping NHS practice) would not exist without the openness of the attendees. They are the real stars of the project.
The attendees gave so much of themselves and we have several more community researchers to help us with the next chapter! Including a audio description for our outcome video.
Here’s hoping we get the funding for the next stage. Keep your eyes open for infographics, blogs and much more. The project is over but really it’s only just beginning.
All the information on the process and what we found out can be found in the links below:
Podcast on the project and findings
Findings article in Journal of Community Nursing
3 responses to “Cancer services accessibility report”
[…] Katie Munday (me!) has been working on the What I Would Like to Say… project since 2022 exploring the experiences of cancer services of Disabled and Neurodivergent people (including screening all the way through to palliative care). I have reflected on this in more depth here. […]
[…] In 2023, we released our findings for ‘What I’d Like to Say’, the initial findings of a community research project exploring disabled and neurodivergent peoples experiences with cancer services. This first phase involved collaborating with local support organisations to understand the challenges faced, such as physical inaccessibility to screenings, unclear information, and the lack of emotional support (see more information on the process and what we found here). […]
[…] free. But in healthcare kindness can sometimes feel like a scarce resource. One participant from What I Would Like to Say… put it […]