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Accessible Cancer Care: Lessons from Autistic Communities
Rosie Tansley and Katie Munday shared insights from their talk at Manchester Metropolitan University about improving cancer services for autistic individuals. The presentation highlighted community-based projects addressing accessibility, patient experiences, and necessary changes in care. Free tickets are available for the hybrid event on March 11th.
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Understanding Belonging: A Summary of Recent Trans Autistic Research
The study examines the experiences of transgender and gender diverse autistic adults regarding belonging and exclusion across three levels: macro (workplaces), meso (healthcare, education), and micro (personal relationships). It highlights the complexity of their experiences influenced by systemic ableism and transphobia, advocating for structural changes to enhance inclusivity and supportive environments.
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Enhancing Accessibility in Substance Use Services for Autistic Clients
This report examines the accessibility of substance use services in Portsmouth for autistic individuals, emphasising the need for tailored environments and continual staff learning. It highlights systemic barriers, advocating for ongoing neurodiversity training and the adoption of the SPACE framework. The findings show accessible care is achievable through collaboration with autistic communities.
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My Research
Katie Munday, a PhD candidate at the University of Portsmouth, researches the experiences of transgender and gender-diverse autistic adults in accessing health and social care in the UK. Their community-based projects focus on healthcare accessibility, substance use in autistic individuals, and improving cancer service resources for marginalised communities.
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Understanding Double Empathy in TGD Autistic Healthcare
The blog discusses healthcare inequities faced by gender diverse autistic adults, emphasizing the Double Empathy Problem. It highlights systemic barriers, biases in healthcare, and the challenges posed by transmedicalism. Recommendations for practitioners include checking biases, using inclusive language, and valuing lived experiences to foster equitable healthcare environments.
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Inclusive Cancer Care: Voices of the Disabled Community
The project led by Rosie Tansley and Katie Munday focuses on making cancer care accessible for disabled and neurodivergent individuals. Through participatory methods, it identifies barriers such as inaccessible information and poor communication, while proposing solutions that prioritise empathy and inclusivity in healthcare. Meaningful changes are essential for effective support.
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Inclusive Practices for Better Gender Identity Care
To improve gender identity healthcare for autistic and neurodivergent individuals, key recommendations include hiring a trans healthcare coordinator, enhancing GP training, prioritizing trauma-informed care, and ensuring accessibility. Participants emphasise the need for empathy, communication, and a patient-centered approach that recognises and addresses the unique challenges faced by this community.
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Transforming Cancer Care: Listening to Disabled Voices
The project with Help and Care, Wessex Cancer Alliance, and Macmillan Cancer Support highlights the inequities disabled people face within cancer services. Participants shared distressing experiences showing systemic bias and barriers. The research emphasizes the importance of listening to these voices, advocating for dignity, and fostering empathy to ensure equitable treatment for all individuals in…
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Enhancing Accessibility in Gender Identity Services
Autistic and neurodivergent individuals face significant barriers in accessing gender-affirming healthcare, as revealed by research on their experiences. Discrimination occurs when disclosing autism, leading to feelings of frustration and alienation. Accessibility issues further complicate care, with non-binary experiences often overlooked. A call for continuous learning and empathy in healthcare is essential for improvement.
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Enhancing Accessibility for Autistic Clients in Substance Use Services
I am part-way through my SCDTP internship with Portsmouth City Council, focusing on enhancing accessibility for Autistic clients in substance use services. Utilising findings from the Autistic Substance Use Network, I am auditing training and Recovery Hub environments while collaborating with LGBTQIA+ recovery workers to develop a comprehensive accessibility blueprint.