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Trans Aware Cancer Care: We almost have lift off!
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Activism and academia – where can we make the most difference?
I had a really enlightening conversation with two other Autistic researchers a few days ago. Although the conversation was around autoethnography (in which the stories of the researchers is the data collected). The conversation also reminded me that research doesn’t have to be written, quiet, or clean. It can be creative, loud, and messy. Research…
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The pain and the anguish of being an Autistic autism researcher
Reading through autism research as an Autistic student or researcher can be emotional and traumatic, especially when so many of us are encouraged to use research that doesn’t align with our lived experiences. Using the American Psychological Association’s framing of autistic embodiment, in particular, does not fit with how I know Autistic experience to be.…
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My reflections on our cancer service accessibility research
Earlier this week I did my first session with a disability group for our cancer services access study (find out more about that here). Although I cannot share any of the people’s really powerful insights here I would like to share how I felt about the session. The start of the session was very ADHD…
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Spectrum 10K: What worries us about the theory behind this project?
Spectrum 10K, started more than 18 months ago to collect 10,000 DNA samples and medical histories of Autistic people across the UK. There are some valid concerns around the efficacy of this work but also the theory and tools which are used within it. Some worrying tools and theories used within Spectrum 10K– The Autism…
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Recruitment: Improving cancer services for Disabled people
Edit: These sessions have now come to an end. They were conducted with community groups in spaces and ways which suited them. I am involved in this amazing work with another Disabled community researcher under Macmillan Cancer Support, Bournemouth University PIER, Involving People and Wessex Cancer Alliance. Improving cancer services for disabled people. Do you…
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Trans and / or non-binary Autistic narratives: research poster
In 2020 I started my MRes at University of Portsmouth, researching trans and / or non-binary Autistic narratives. I wanted to make my work free and accessible to as many people as possible. Participants have given informed consent for me to publish this information, all identities will be kept confidential in line with UoP’s ethics…