-
The importance of Autistic-led training and research
The struggle for Autistic trainers is common as non-Autistic individuals often take precedence. Organizations claim to support #AutismAwareness but refuse to pay Autistic individuals for their expertise. Even those who include Autistic co-creators may overlook their lived experience. The focus must shift to including Autistic individuals in leadership and fairly compensating them.
-
UK university ethics applications – a neurodivergent nightmare?
Policies within UK universities outline that research undertaken therein requires ethical review, however the process of obtaining favourable opinion can be inaccessible to Autistic ADHD students due to ableism within Higher Education. I wanted to know whether I was the only Autistic and ADHD / Attention Hyperactive person who really struggled with my degree ethics…
-
The ARC is at it again
CW: suicide, ableism, Simon Baron-Cohen Another study suggested by Cambridge’s Autism Research Centre (ARC) has been paused. The new study by Professor Simon Baron-Cohen planned to read and pick apart the diaries of CSL*, a young Autistic girl who killed herself. The intention was that researchers could use her diaries to improve their understanding of…
-
Trans Aware Cancer Care: We almost have lift off!
-
Activism and academia – where can we make the most difference?
I had a really enlightening conversation with two other Autistic researchers a few days ago. Although the conversation was around autoethnography (in which the stories of the researchers is the data collected). The conversation also reminded me that research doesn’t have to be written, quiet, or clean. It can be creative, loud, and messy. Research…
-
What I Would Like to Say – at the APPGC
To say my experience yesterday was phenomenal may be an understatement. Myself and colleagues from Help and Care, Macmillan Cancer Support , and the NHS went to the Houses of Parliament. We spoke at the All Party Parliamentary Group on Cancer about the findings from our What I Would Like to Say project. We talked…
-
Things to think about before getting involved in autism research
-
Cancer services accessibility report
The What I Would like to Say project has been running since April 2022 and we’ve been able to speak to some amazing Disabled and Neurodivergent people about their experiences with cancer services in the UK ranging from accessing information and screening, to treatment, recovery and aftercare. Through creative arts we were able to share…
-
The truth about ‘challenging behaviour’
Cw: bullying, mention of abuse, mental health, substance use and death. Challenging behaviour refers to a range of intense and frequent behaviours that threaten the quality of life and / or the physical safety of the person and those around them, behaviours can include aggression, verbal abuse and bullying (Imray, 2017). Challenging behaviour is socially…
-
Community psychology and models of disability
Community psychology examines and supports people’s attitudes, actions and thoughts within the social contexts of their lives, supporting marginalised groups to challenge systems, institutions and legislations which oppress and discriminate (Orford, 2008). Additionally, community psychology (CP) can contribute to the understanding of social issues for both professionals and participants by framing people within their local…