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Working with healthcare providers to improve cancer and general healthcare services
The Trans Aware Cancer Care (TACC) project engages with trans+ individuals about their healthcare experiences, particularly regarding cancer services. Key themes include distrust in providers, the impact of advocacy fatigue, and the need for personalized care. Despite challenges, positive experiences highlight the importance of respect and rapport in healthcare. The aim is to improve services…
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UK cervical screening: What you need to know
Today, I went for a routine cervical screening. In the UK people aged 25-49 receive invitations every 3 years and people aged 50-64 receive invitations every 5 years. I was invited via letter and popped into my surgery to get it booked in. I wanted to share my experience today for people who may have not…
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Trans Aware Cancer Care: My reflections on the first workshop
The first session of Trans Aware Cancer Care happened last weekend at the Seacity Museum in Southampton, and it was brilliant! We spoke to 10 different people about their experiences of cancer services, and their experiences in life generally. We had some tears, and a lot of love and laughter too. TACC made some amazing…
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What I Would Like to Say – at the APPGC
To say my experience yesterday was phenomenal may be an understatement. Myself and colleagues from Help and Care, Macmillan Cancer Support , and the NHS went to the Houses of Parliament. We spoke at the All Party Parliamentary Group on Cancer about the findings from our What I Would Like to Say project. We talked…
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Cancer services accessibility report
The What I Would like to Say project has been running since April 2022 and we’ve been able to speak to some amazing Disabled and Neurodivergent people about their experiences with cancer services in the UK ranging from accessing information and screening, to treatment, recovery and aftercare. Through creative arts we were able to share…
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My reflections on our cancer service accessibility research
Earlier this week I did my first session with a disability group for our cancer services access study (find out more about that here). Although I cannot share any of the people’s really powerful insights here I would like to share how I felt about the session. The start of the session was very ADHD…
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Recruitment: Improving cancer services for Disabled people
Edit: These sessions have now come to an end. They were conducted with community groups in spaces and ways which suited them. I am involved in this amazing work with another Disabled community researcher under Macmillan Cancer Support, Bournemouth University PIER, Involving People and Wessex Cancer Alliance. Improving cancer services for disabled people. Do you…