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Closing Spectrum 10K: A Victory for Autistic Advocacy
Today the Autism Research Centre have published the Spectrum 10K consultation and what they plan to do next. During their consultation period they heard from over 500 Autistic people and parents/carers of Autistic children.The gap between the consultation finishing and their making the consultation public has been a long one (read Unpaused and Still Unethical).…
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Spectrum 10K: Consultation update
After an overwhelmingly large boycott from Autistic advocates, academics and many others on and offline, Spectrum 10K (a project aiming to collect the DNA and medical history of 10,000 Autistic people) was paused for ethical review. Ethical approval was re-granted with the caveat that consultation be conducted throughout the remainder of the project (read more…
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Spectrum 10K: What worries us about the theory behind this project?
Spectrum 10K, started more than 18 months ago to collect 10,000 DNA samples and medical histories of Autistic people across the UK. There are some valid concerns around the efficacy of this work but also the theory and tools which are used within it. Some worrying tools and theories used within Spectrum 10K– The Autism…
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Spectrum 10K – unpaused and still unethical
In August 2021 the Spectrum 10k (S10K) research project was announced. It aimed to collect 10,000 DNA samples and medical records of Autistic children and adults (there is more information on the study at Aucademy). After a well thought-out and planned boycott from Autistic advocates, academics and many others, S10K was paused so the ethics…