Tag: Inequity

  • Understanding the Gender Gap in Autism Diagnosis

    Understanding the Gender Gap in Autism Diagnosis

    The historical perception of autism as primarily a male condition has led to a significant diagnosis gap for women, girls, and gender-diverse individuals. While theories like the Female Autism Phenotype have emerged, they often reinforce gender stereotypes and exclude marginalized groups, complicating access to support and erasing diverse autistic experiences.

  • Working with healthcare providers to improve cancer and general healthcare services

    Working with healthcare providers to improve cancer and general healthcare services

    The Trans Aware Cancer Care (TACC) project engages with trans+ individuals about their healthcare experiences, particularly regarding cancer services. Key themes include distrust in providers, the impact of advocacy fatigue, and the need for personalized care. Despite challenges, positive experiences highlight the importance of respect and rapport in healthcare. The aim is to improve services…

  • Trans Aware Cancer Care: We almost have lift off!

    Trans Aware Cancer Care: We almost have lift off!

    We had a great planning meeting today for Trans Aware Cancer Care. This is the first time many of us had been in a room together and it was so much nicer than being in constant Zoom meetings. We’ve finally settled on the idea for what creative tools we might want for the workshops too.…

  • Accommodations aren’t accommodations when you have to fight so hard for them

    Accommodations aren’t accommodations when you have to fight so hard for them

    As a Disabled person supporting other Disabled people your needs, intensities, and behaviours don’t always align. When your children need you at your best sometimes you are in full fatigue, pain or overwhelm. Sometimes when your children need you at 100% you only have the spoons for 20%. The admin for fighting for your child’s…

  • What I Would Like to Say – at the APPGC

    What I Would Like to Say – at the APPGC

    To say my experience yesterday was phenomenal may be an understatement. Myself and colleagues from Help and Care, Macmillan Cancer Support , and the NHS went to the Houses of Parliament. We spoke at the All Party Parliamentary Group on Cancer about the findings from our What I Would Like to Say project. We talked…