Tag: Fatigue

  • Accommodations aren’t accommodations when you have to fight so hard for them

    Accommodations aren’t accommodations when you have to fight so hard for them

    As a Disabled person supporting other Disabled people your needs, intensities, and behaviours don’t always align. When your children need you at your best sometimes you are in full fatigue, pain or overwhelm. Sometimes when your children need you at 100% you only have the spoons for 20%. The admin for fighting for your child’s…

  • One does not simply walk into the doctors

    One does not simply walk into the doctors

    There are too many steps to take before Disabled people get through the door at doctors’ surgeries or hospitals. We must unravel our feelings and experiences from those of our usual symptoms of chronic illness. Then we must muster up the energy to book an appointment, if we use AAC this can be even more…