Tag: Autism research

  • Taking Autistic researchers seriously  

    Taking Autistic researchers seriously  

    The author’s experience as a neurodivergent research assistant at a UK university highlights challenges in navigating administrative processes exacerbated by Covid-19. Despite their qualifications, they faced bureaucratic obstacles that led to frustration and workplace insecurity. This experience reinforced the importance of support and understanding for neurodivergent individuals in collaborative environments.

  • Spectrum 10K: Consultation update

    Spectrum 10K: Consultation update

    After an overwhelmingly large boycott from Autistic advocates, academics and many others on and offline, Spectrum 10K (a project aiming to collect the DNA and medical history of 10,000 Autistic people) was paused for ethical review. Ethical approval was re-granted with the caveat that consultation be conducted throughout the remainder of the project (read more…

  • Things to think about before getting involved in autism research

    Things to think about before getting involved in autism research

    I have been a participant in a fair amount of Autistic experience research (what others may call autism research) and I’ve led and assisted on a few more besides. There’s a few things I look for when deciding whether to engage in such research. First, I look at who is running the research – are…

  • Spectrum 10K: What worries us about the theory behind this project?

    Spectrum 10K: What worries us about the theory behind this project?

    Spectrum 10K, started more than 18 months ago to collect 10,000 DNA samples and medical histories of Autistic people across the UK. There are some valid concerns around the efficacy of this work but also the theory and tools which are used within it. Some worrying tools and theories used within Spectrum 10K– The Autism…

  • Trans and / or non-binary Autistic narratives: research poster

    Trans and / or non-binary Autistic narratives: research poster

    In 2020 I started my MRes at University of Portsmouth, researching trans and / or non-binary Autistic narratives. I wanted to make my work free and accessible to as many people as possible. Participants have given informed consent for me to publish this information, all identities will be kept confidential in line with UoP’s ethics…