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Closing Spectrum 10K: A Victory for Autistic Advocacy
Today the Autism Research Centre have published the Spectrum 10K consultation and what they plan to do next. During their consultation period they heard from over 500 Autistic people and parents/carers of Autistic children.The gap between the consultation finishing and their making the consultation public has been a long one (read Unpaused and Still Unethical).…
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The ARC is at it again
CW: suicide, ableism, Simon Baron-Cohen Another study suggested by Cambridge’s Autism Research Centre (ARC) has been paused. The new study by Professor Simon Baron-Cohen planned to read and pick apart the diaries of CSL*, a young Autistic girl who killed herself. The intention was that researchers could use her diaries to improve their understanding of…
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Spectrum 10K: potential amniocentesis study shows the ARC for who they really are
Content warnings: amniocentesis, pregnancy, abortion, ableism, eugenics. The Autism Research Centre (ARC), based at University of Cambridge, is running Spectrum 10K – a eugenics project which claims they want to “help the well-being” of Autistic people and our families. The Boycott Spectrum 10K team has spoken about the many issues of this project in various…
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Spectrum 10K: What worries us about the theory behind this project?
Spectrum 10K, started more than 18 months ago to collect 10,000 DNA samples and medical histories of Autistic people across the UK. There are some valid concerns around the efficacy of this work but also the theory and tools which are used within it. Some worrying tools and theories used within Spectrum 10K– The Autism…
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Spectrum 10K – unpaused and still unethical
In August 2021 the Spectrum 10k (S10K) research project was announced. It aimed to collect 10,000 DNA samples and medical records of Autistic children and adults (there is more information on the study at Aucademy). After a well thought-out and planned boycott from Autistic advocates, academics and many others, S10K was paused so the ethics…
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Spectrum 10K – the boycott continues
Since its announcement in August 2021 thousands of us Autistic people have raised major concerns around the ethical considerations (or lack thereof) of the Spectrum 10K study. If you’re unaware of the study and it’s aims please see the immense amount of resources created by the Boycott Spectrum 10K via aucademy here. Due to the…